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Personal Narratives Across New York State

In tandem with the campaign, the statewide Collaborative is collecting stories from across New York State.  The stories are personal narratives that describe how the lack of adequate funding for the wages of DSPs in the non-profit service provider budgets have severely negatively impacted the lives of individuals with IDD, their families, and the support staff that cares for them.

Read Spectrum News Story

On March 8, 2022, Spectrum News, in Central New York, reported on the DSP workforce crisis and advocacy campaign. 

Collaborative Representing 110,000 New Yorkers with Disabilities Launches Campaign to Raise Wages for Direct Support Professionals


The Care Management Alliance of New York, Inc.

In every county of New York State, Care Coordination Organization/Health Homes (CCO/HHs) support individuals with Intellectual and/or Developmental Disabilities (I/DD) through all stages of life. CCO/HH Care Managers coordinate services and supports to address all social determinants of health, including health care, employment, housing, community relationships and resources for economic stability.

This includes over 75,000 individuals who live at home and depend on coordinated services, and over 36,000 individuals who require 24/7 care and oversight.

Our mission is to ensure that all New Yorkers with Intellectual and/or Developmental Disabilities can continue to access services for fulfilling, meaningful, and inclusive lives in our communities, especially in the face of this pandemic.

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At a Glance

In New York State


Individuals with I/DD received a Life Plan and have access to 24/7 Care Management. 75,000 of whom live in the community with family/ housemates or on their own.

CCO/HHs created to deliver I/DD care management using NYS existing, proven Health Home model .


Care Managers that serve as a lifeline and advocate for members and families are employed across all 7 CCO/HHs.